Julia Nable is co-founder of SandorMax, a full-service agency that works with pharma, biotech and healthcare organizations to create innovative marketing programs. In her role as Marketing Strategist, Ms. Nable devises solutions that utilize cutting-edge web technologies and social media strategies.
PRESENTER
(S):
Tai Spargo, National Organization For Rare Disorders (NORD), United States
Tai Spargo is NORD's Assistant Director of Communications. Her responsibilities include oversight of social media and Rare Disease Day US activities. Previous experience includes positions in the government and at non-profits. She holds a Masters of Public Administration from American University.
Alex La Croix, Synageva BioPharma Corporation, United States
Brian created Inspire in 2005 with the goal of accelerating drug development through trusted online patient communities organized by therapeutic area. Previously, Brian led technology strategy for The Washington Post and was the founder of content management software company worldweb.net.
Description
Relevant case studies will be presented to demonstrate how online patient communities and social media are revolutionizing how patients gain access to disease and treatment information.
Learning Objectives: Identify best practices and processes for creating online patient communities using social media Evaluate specific social media innovations and platforms that connect with rare disease patients Discuss critical elements for pharma and patient organizations to collaborate on online communities.