DIA 48th Annual Meeting
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Rare Disease Clinical Research Consortia: Immediate and Rich Sources of Translational Research Data, Partnering Opportunities
Track : Track 18: Rare/Neglected Diseases
Program Code: 396
Date: Wednesday, June 27, 2012
Time: 3:30 PM to 5:00 PM  EST
CHAIR :
 Cindy Hahn, Alagille Syndrome Alliance, United States
PRESENTER (S):
 Rashmi Gopal-Srivastava, National Institutes of Health, United States
 Cindy Hahn, Alagille Syndrome Alliance, United States
 Ronald Sokol, Children's Hospital Colorado, United States
Description
Rare disease clinical research consortia offer a rich data source for translational research. Investigating diseases from porphyria to pediatric cholestasis, they present an array of collaborative opportunities for the pharmaceutical industry.

Learning Objectives:
Describe the basic framework of the RDCRN and the ChiLDREN Network
Recognize the rich and immediate data source offered by the RDCRN and the ChiLDREN Network
Recognize the innovative partnering opportunities presented by these Rare Disease Clinical Research Consortia.