Geneva Centre International Symposium on Autism 2010
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Concurrent Session 04 - Rallying the Troops: Getting Our Family House Together
Program Code:
070
Date:
Thursday, November 4, 2010
Time:
1:30 PM to 3:00 PM
EST
SPEAKER
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Marilyn & Joe Henn are parents of a daughter with significant autism who received APSE‘s 1999 National Supported employment award & ASA’s 2003 National award for “Outstanding Individual with Autism”. They have presented nationally and as keynote speakers on how they developed transition services that let to their daughter’s full-time employment as a mail courier and microfilmer as well as a fully integrated life in the community.
Marilyn Henn, a registered nurse and has received extensive training in behavior management, transition and supported employment from experts across the country.
She has been an Outreach transition training Coordinator for Kent State University, President of both her local and the State of Ohio Autism Society chapters and, along with her husband, presented for Virginia Commonwealth University’s Research and Rehabilitation Training Center’s internet training series. She & her husband were both the only invited parent members of a task force event in Washington D.C. bringing together the Department of Labor, the Office of Disability Employment Policy and VCU staff to get “out of the box” on how to better employ individuals with disabilities and make their lives richer with appropriate supports.
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Description
Outline of Presentation:
One of the most daunting choices faced by the individual with disabilities and their family is “Where will I live and how much control will I have in how I live?”. See how a family of a young lady, who was non-verbal & has severe autism and behaviors, faced this decision proactively. This presentation covers the process of residential choice from least restrictive to most restrictive options and then the implementation of a preferred model of family friendly choice & control called “The Family Consortium” option. Contrast is given between the traditional group home and this model. The history identification of establishing a family consortium and what has made theirs a success for over 15 years will be presented including such important topics as selecting compatible roommates and families as well as a consensus building service provider.