Session Information
The 4th International Conference on Patient- and Family-Centered Care
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Patients and Families: More Than Research Subjects-- Patient Engagement in the Research Continuum / Sharing "The Gift of Life" in Siberia: A Collaboration Between Scientist, Patient, and Administrator
Track : August 17, 2009
Program Code: B6
Date: Monday, August 17, 2009
Time: 2:00 PM to 3:15 PM  EST
SPEAKER (S):
Patricia Sodomka, FACHE, Senior Vice President, Patient- and Family-Centered Care, Director, Center for Patient- and Family-Centered Care; Medical College of Georgia, Augusta, GA
Peggy Wagner, PhD, LPC, Certified Communications Trainer, Director, Research, Department of Family Medicine
Christine Abbott, Lead Patient Advisor/Research Technician, Medical College of Georgia, Augusta, GA
Martha Hayward, Volunteer, Member, DFCI Patient and Family Advisory Council
Magnolia Contreras, MSW, MBA, Director, Community Benefits; Dana-Farber Cancer Institute, Boston, MA
Description
Patients and Families: More Than Research Subjects-- Patient Engagement in the Research Continuum

The importance of involving patients and families in all health care activities, including research programs, is now being recognized. This session will outline practical ways that patients and families can be involved throughout the research continuum.

Sharing "The Gift of Life" in Siberia: A Collaboration Between Scientist, Patient, and Administrator

A doctor, volunteer, and administrator organized a symposium in Siberia and share this experience. This unusual collaboration is a model for reaching out to other cultures by accessing the resources of a medical institution committed to conquering cancer.


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